Hanging on in quiet desperation is the English way
The time is gone, the song is over,
Thought I’d something more to say.
Time – Pink Floyd
The time had come. Time to go. I was told the evening before that my bed at Sheffield spinal unit had been secured and that I would be transported the following morning. 54 days after my injury. I knew I had outgrown what could be offered to me on HDU; I was having neuro-physio twice a week (once a week more than I was supposed to: my physio had taken a particular liking to me) and there were limits on what could be achieved. I had reached them. In a way, this whole story, my life, is about reaching limits.
I had been told some very positive things about the spinal unit; that it was much closer to a hotel than a hospital (which I was very happy to hear: I had had very little true privacy in the last six weeks) and that they worked you with boot camp style efficiency.
I was desperate to apply my work ethic in a way that could let me escape; a modus operandi that I had relied heavily upon my entire life and that I still had an almost indomitable faith in. I had quietly harboured an infantile belief that with the right help and the correct application of myself I could defeat this. I would be the one. “Man defies all odds and walks again”. “The doctors said it was impossible,” perfectly neurologically sound man says, “but I’m just that good”. Now, I didn’t water this little optimism plant, I kept it in the old dark brain basement potted up in sad serious soil, but I did go down there every now and again in the middle of the night when all of the realistic thoughts were asleep, and despite everything, the scrappy little bastard wasn’t dead yet. I had conquered the ventilator ahead of time, why not continue? Just like Genghis Khan, but my own spinal-cord instead of the entirety of central Asia.
Those noctambulous expeditions were occasional at best and my morale went unwatered for long stretches: most of my time was not spent in the basement-or even in the house- but the sewer. I had been flushed. Rinsed. For most hours of the day and most days of the week I considered my life essentially finished; the film was over and I just needed to get through the end credits, thank everyone for coming out and let them know not to expect a sequel.
The basement and the sewer had one thing in common; I went there alone and tried my best not to be seen: it was just easier that way.
The morning came and I was loaded up onto a trolley and loaded into an ambulance along with the now usual assortment of medical equipment. Like cargo. An anaesthetist and one of the ITU nurses escorted me to make sure I got to Sheffield still breathing. They were worried about travel sickness and are considering giving me medication. I told them it would be fine. I had lived a life blessed in the fact that many hundreds of times before, a million miles away, I had said “it will be fine” and it was. And it was. I could see out of the window. I remember being struck by the perturbing realisation that these were the first cars I had seen in six weeks. The last car I saw nearly killed me. We filled the hour with banal words while places I knew, roads I had trodden hundreds of times year after year rolled on by behind the glass; I even recognised some of the curbs, some of the signs, some of the graffiti: the past five years of my life etched out in all of the little stories, baked into the bricks, spelled-out in concrete, incomplete, but finished. I was being shown my history, an urban flip book with my memories intaglioed on every page. It was all so grey. Alien, almost. When would I see this place again? That hour holds a certain significance in my mind, but I’m not sure why; perhaps I just feel it is supposed to. Some hours have that mysterious staying power, that resonant quality that stays with you, changes you.
I’m writing this knowing that it is not happy or easy reading, but I wanted to be honest and to do my memory justice; to show you with savage clarity what that time was like.
I got rolled out of the ambulance at the spinal unit. I was laid flat and so could only enjoy a view of varied ceiling tiles and tired lights as I went up a lift and onto the admissions ward. I remember being disoriented, without being upright it was very difficult to know where I was; it was only weeks later when I could get up that I understood the layout of the place I was living in. Imagine being in a house for weeks and not knowing where rooms are, or how they’re connected. It’s not like Hogwarts, with magical moving staircases and mystery and adventure: it’s more like a disturbing, unsettling delirium.
I was slid from the ambulance trolley to my new bed, my new home at least for the next few weeks. It is very strange to be moved around by strangers, touched and handled without being able to feel it, just knowing that it is happening by the change in scenery in front of your face. You should try lying down completely flat, and by only flexing your neck see how much of your body you can see. Spoiler: it’s not very much.
Two ward staff were checking me in with thick Sheffield accents and I struggled to understand them. The anaesthetist who had ridden with me from HDU quietly joked at the confusion; “do you want to come back with us?” with a smile. I couldn’t smile back. He was speaking to me from across an ocean of anxiety. My escort left me; job complete. It was all very perfunctory: healthcare is a busy world and work is always in motion and there’s always another job waiting for you. I was now on the other side of that world.
A doctor came to assess me; she was only one year further through her training than I had been and could not have been much older than me. She had arrived to clerk me; the process of taking an initial history and making sure all the admission paperwork was in order. This process is a dance every junior doctor knows the steps to and one they perform multiple times almost every shift, and only six weeks before I was probably doing the exact same thing with a different patient and in a completely different universe to this one. Despite all of that it took me a fair while to realise what was actually happening. I couldn’t get the steps right from the other side; I only knew the other half of the dance. Halfway through answering the exhaustive list of questions about myself it dawned upon me that this was the first time I had actually spoken about my injury in this way, with all of my previous conversations being with people who knew as much or more about me than I did. I didn’t like it. The sterile information drifted between us: all facts, no feelings. She looked at me like I was a bomb site, or radioactive, or both. I think I felt the same way. Soon enough it was done and the healthcare conveyor belt continued, with my little bombsite box trundling onwards.
Hanging on in quiet desperation is the English way
The time is gone, the song is over,
Thought I’d something more to say.
Time – Pink Floyd
A healthcare assistant returned with a big red button that was plugged into the wall and placed next to my head: if I needed help, I could bump it to set off the buzzer. I asked what was to happen next and I don’t recall receiving a particularly steadfast answer.
What should I do now?”
“Watch some TV, pass the time,” he said. I hated watching TV. I’d never owned a TV. I liked running around outside.
“I’m not really a TV watching kind of guy.”
He laughed. “Well you will be pretty soon,” he said, pulling a TV down from the ceiling on a mechanical arm, positioning the screen in front of me. “What you want to watch?”
I didn’t know. I ended up watching the Commonwealth games, and he went away. I realised very quickly that watching young, athletic people move with perfect, neurologically unhindered ease, free from crippling and life changing injury, free from guilt and tragedy-wasn’t really what I needed. I couldn’t change the channel; the images were in front of me and it was difficult to escape them. I looked around the room; the curtains were partially drawn and yellow, the tired yellow of jaundice or neglected teeth. There was a small whiteboard on the far wall with the message “welcome Edward” handwritten upon it, and a little smiley face underneath. Nobody ever called me Edward. It struck me that that may have been the first smile I’d seen since I had arrived. To my right there was a window perhaps 2 feet tall and 1 foot wide which I would spend an inordinate number of hours staring out of in the ensuing weeks: the view from my bed consisted of a small square of sky and three tall poplars on the horizon. There had been a similar row of poplars near my primary school as a child; I remember them being cut down and my youthful, naïve mind couldn’t understand why; now, years later, it was me who had been cut down and I found myself the set with the same incomprehension. What a waste.
It was then, in that state of mind, that I first met my consultant. I’ll leave that encounter to next time.
I am routinely amazed by people’s experiences who seem possessed by an immediate, reactive, visceral will, a belief that they can continue. They sniffed the subterranean wasteland, said “nah”, and took to the skies instead, never looking back. I wasn’t blessed with this superhuman optimism. I’m no expert in trauma psychology, but knowing the extensive implications of my injury as soon as happened meant that I didn’t get to peacefully nurse my dreams and identity as they died slowly, with time to adjust and prepare myself with the impending loss, with time to come to terms, to say goodbye. Instead, they died in front of my eyes.
I suppose I’m writing this at least in part for those people whose optimism still hasn’t seen the sunlight. Who, like me, discovered themselves adjusting to such profound and intimate loss -the loss of who they are- with resignation, with death and defeat ruling over them, black and empty inside.
Tetraplegia is a hard life. Life is hard. I wish somebody had told me that, ratified it, explaining that yes, the world can be colossally unfair and yes, the weight of unfairness placed upon you is greater than most, so much so that the ordinary man cannot even comprehend it; that is so alien that the majority now regard you, your life, with a sick fascination, and for a long time you, when you can bear to look, will regard it in the same way. That to go on, to bring yourself together with only will (and sometimes not even that) under what sometimes is intolerable adversity, burdened with the savage self-imposed scrutiny of your own character (what am I worth? Am I still a person?), knowing what you have lost and still bending life to accommodate it is what it means to be grown, to grow further, to be strong.
With time I have realised that those brain-sewers we sometimes live in are piped together to plumb the breadth of human experience. They are necessary. You and I have that in common. Is that not why you’re reading this? It is not why I’m writing this? For you, whoever you are, to see what shape a man becomes when subjected to something extraordinary, something nightmarish, something beyond all reason? And then to take that silhouette and place it over your own life, to compare and remark over the differences, to speculate on your future, my future, but more importantly to see the similarities: I’m a person just like you. We all cry sometimes. We all live in a world that can be unfair, with shit, with sewers, with sewage that gets into your soul, that bends you out of shape. This period of my life that I am writing about was easily the worst of my now 26 years on this earth; I’m in such a better place now.
I’ll leave you with something I read recently.
I. A. Richards, The Principles Of Literary Criticism (1924) [Ch. 32, 245]:
“What clearer instance of the “balance or reconciliation of opposite and discordant qualities” can be found than Tragedy. Pity, the impulse to approach, and Terror, the impulse to retreat, are brought in Tragedy to a reconciliation which they find nowhere else.”
Now I know that’s pretty wordy, but I think it sums up a lot of the last 2000 words. What happened to me was a tragedy. When interacting with people, the world, and even myself, I do often face those two qualities (pity and terror) and those two reactions (to approach, to retreat). I don’t think that’s bad; I think it just is. Tragedy is stuck in the middle: you want to look at it, but you don’t. You want to talk about it, but you can’t. Everyone has some tragedy in their lives; you can’t escape it, but you also are fascinated by it; like trading cards for the soul, you want to compare your collection with somebody else’s. I guess this is me showing you mine.
Beautifully written Ed, as always.
I have read all your blogs and thought about you often although you do not know me . You are many things as others have said so well but without doubt you are a writer and your poetic , powerful voice is being heard. Keep writing Ed ….
Once again your words move me. The odd phrase I can hear your Dad’s voice too. Reading this at this particular moment in time we are all just a hair’s breadth away from the unexpected
HI Ed, It’s good to read more from you ,as ever, Thank-you for “showing us yours!” It takes me back to visiting you in Sheffield in that June. Looking forward to more from you. With out love.
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Thanks again Ed for your words, written in poetry and “savage clarity” it really is beautiful – You and I have known each other a long time, and you’ve never stopped being an inspiration.
Hi Ed , you don’t know me , I came across your Blogg after being introduced to it by my nephew Chris who used to live in Ingham and now resides in Nottingham . I’m a nurse, and started my training when I was 18 – 35 years ago… I have heard many stories and seen many things over those years related to heath and how people manage what thrown at them but I find you writing inspirational. I always thought the life we think we know and live is very fragile, your strength in writing and sharing your story is to me extortionary and honest , thank you
Hi Ed
Rita’s comments sum up my feelings entirely. I am compelled to read your incredible blogs. You are an inspiration to us all. Keep writing……
hello there, your article is so good.Following your site.
Hi Ed,
You don’t know me and I don’t know you. I actually went to school with Izzy way back when…
It’s 00:46 and I’ve just binge read your entire works, certainly not how I thought my Saturday night would go! But I’m pleased it did. Thankyou for sharing your story, and Thankyou for being so honest in your writing, I like to refer to it as “radical honesty”, something I’m rather fond of myself, and it seems we may think similarly in that way.
It looks like we’re also similar ages, so you can understand how your story resonates.
I felt a whole raft of emotions reading your posts, many complex… but rest assured, I finished on “Chateauneuf Du Pape for heroes”, so one can only assume the emotion I was feeling reading that haha.
I’ll be subscribing, and look forward to reading more.
Thanks Mil,
I appreciate that this blog is a bit of a weird Internet rabbit hole but I’m glad you enjoyed it. Hopefully I’ll maintain this productivity and you won’t have to wait months for the next instalment. Thanks for subscribing!